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Is it possible?? A natural approach to healing ulcerative colitis... {part 1}

Is it possible?? A natural approach to healing ulcerative colitis... {part 1}

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It’s working, it’s working!!!


After nearly 5 weeks of an intensive elimination diet, specifically catered to the foods Lucia is sensitive to, we are seeing progress!


Lucia’s inflammation is down!! It is still not of normal levels, but getting so much closer to normal!!!! So how did we do it? I’m going to share with you two things….

  1. How to coordinate your own care

  2. The steps we took (as a guideline for you to work from)


Nearly two months ago, Lucia had a spout of some nasty symptoms and they freaked us out, so we went back to her pediatric GI, ran tests and finally took the leap of faith to see a naturopath (which we had to pay for out of pocket). The naturopath recommended some supplements to start using (which I share about here in a previous blog post), she also recommended food sensitivity testing combined with several nutrition focused labs (which we requested our GI run- so our insurance would cover it). 
 

I coordinate her care myself! First of all, I listen, I’m respectful, I ask a lot of questions, pick their brain about their perspective. Then I tell them what I’m hoping to do. Yes, I have done a lot of research, no I am not an expert and NO I do not expect them to agree or even support what I’m doing. Yes, if they have a strong opinion about something, I listen to their input and consider it througholy.

 

Doctors do not have all the answers, just like me, as a teacher, I don’t have all the answers for how to teach or parent a child best. I certainly have experience, and can offer tips, but what I’m suggesting might not work for your child, and I’d expect you to hear my words, but determine if they are best for your family with your own instinct and intuition.

 

Our pediatric GI is incredibly supportive of our desire for a natural approach, and respected our decision to hold off on trying any western medicine.

 

The steps we took… when it seemed like Lucia was having a flare-up

  1. Call her pediatric GI, phone visit - labs ordered
    STOOL CALPROTECTIN
    CLOSTRIDIUM DIFFICILE ANTIGEN AND TOXINS A AND B
    STOOL (FECES) GASTROINTESTINAL PATHOGEN PANEL
    WHITE BLOOD CELL DIFFERENTIAL
    VITAMIN D
    CBC (COMPLETE BLOOD COUNT) WITH DIFFERENTIAL
    C-REACTIVE PROTEIN
    COMPREHENSIVE METABOLIC PANEL
    VITAMIN B 12 AND FOLATER
    IRON AND IRON BINDING CAPACITY
    ERYTHROCYTE SEDIMENTATION RATE (ESR)

  2. Get all labwork done

  3. Visit pediatric GI in office
    We talked specifically about diet and impact on healing. Even though her GI could not confirm that diet has any direct correlation to healing (essentially she couldn't promise it would heal Lucia, which I accepted). Remember MD's are research based, and if there hasn't been clinical research to support the result, they can't recommend it as a treatment plan. And a wise friend pointed out to me, there isn't much clinical research done on the impacts of diet on a person, because messing with someone's nutrition could be considered inhumane. (food for thought- thanks Joey)

  4. Go see naturopath
    We visited a school that offered a discount based on income level, and I don't mind working with students, they are being guided by a trained naturopathic physician.

  5. Get labwork done with naturopath (the ones her pediatric GI couldn’t do) 
    Comprehensive food sensitivity panel (igg response), covered 96 different foods

  6. Visit naturopath again to discuss treatment plan and lab results

  7. Start 6 week elimination diet, cutting out all foods the naturopath determined to be problematic for Lucia (based on food sensitivity testing- your bodies response to igg antibodies)

  8. Follow-up labs with pediatric GI as end of 6 weeks nears
    I highly recommend getting this done BEFORE re-introducing any foods. We found with Lucia that her inflammation was significantly down but still not at normal levels. So my current plan is to do another 6 weeks on the elimination diet.



The biggest advice I would give, is that I was transparent with both parties, I explained to the naturopath that she has a pediatric GI, who I like, but I don’t like the approach of “trying” western meds to see if they work. Then I explained to the pediatric GI that I was working with a naturopath, wanted to do food sensitivity testing and add some supplements. Obviously I felt like I was in a perfect scenario, because both parties were open, happy to work within the boundaries of what we wanted and supportive. (I actually requested several labs to be run that the naturopath wanted, through her pediatric GI- for insurance reasons) Unfortunately we have had to pay for all naturopathic appointments and labs through them out of pocket, but the naturopath was mindful and helpful at lowering costs in order to best accommodate our needs.



Coordinating your own care definitely takes some finess, social skills and research on your end. My belief is definitely that food and how we fuel our bodies has a significant impact on our health (in every facet) and that is a propelling factor for me, my researach and caring for Lucia's ulcerative colitis naturally.

How do I begin a gluten-free lifestyle?

How do I begin a gluten-free lifestyle?

Smartphone Sabbath

Smartphone Sabbath